International Rare Disease Awareness Day

41K views · 191 reactions | As he got older and thought about the progression of his rare disease, JJ had to make some tough decisions about what to do with his life. Watch his experience living with ASMD to raise awareness during #RareDiseaseDay | Sanofi | Facebook

Many parents of kids with rare diseases fight for research — even if it’s too late for their child

What is a rare disease and what causes it?

Rare Disease Awareness Day

Watch: New rare disease awareness campaign launched

Families promote advocacy, awareness on National Rare Disease Day